Hello, my name is Douglas and Julie (one of the founders of Achalasia.us) is my
wife (I'm the one on the right, the other is my brother, Bill). As far as my
experiences as a partner I have to admit it has really been minimal. I missed all
the regurgitation and sleeping sitting up or in a chair, the botched first surgery,
the problems with insurance, etc..
Julie had just had her last surgery, an open myotomy, when we first met. She
had only been home a few weeks. She was still in bandages and suffering from
an open incision that had to be repacked by an in home nurse on a daily basis.
As for other areas of her disease I have come to accept the foam, the fact that
she has to drink her food down at times, and that she has to pause every once
in a while between bites of food. I have been with her 2 of the 7 visits to the
Cleveland Clinic for check ups/dilation's.
I'm really not up on my terminology of the disease as far as, surgeries and such
so I can't get too technical yet. What I have learned is that she is doing very well
and I know that things could be and can be much worse. And for that I'm very
thankful that she is doing so well.
If you would like to talk more from a partners point of view, I'm always open!! I
can be reached by e-mailing me at: Dwarren@achalasia.us.
